Welcome to ACCORD, your source for information on primary care in rare diseases
Approximately 1 in every 10 Americans has a rare disease, yet many health care professionals (HCPs) lack confidence to treat primary care–related issues in their patients with rare diseases.1,2
The Association for Comprehensive Care in Rare Diseases—or ACCORD—is a new ally in the rare disease community that focuses specifically on improving the quality of primary care for people living with rare diseases, by:
- Championing clinical and administrative best practices for managing these conditions
- Facilitating dialogue between primary care and specialty care providers
- Equipping providers with tools and resources to address patients’ unmet needs
ACCORD is committed to enhancing primary care for patients with rare diseases.